My father was diagnosed with bladder cancer in 2012, just days after his 58th birthday. He lost his mother to the disease years before I was born. Right after his diagnosis, I remember telling myself, “There have been so many strides in cancer treatments over the past thirty years. Surely
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BCAN – FDA Workshop: August 8, 2019. 12-4PM EDT
BCAN – FDA workshop agenda FINAL Follow the Workshop: @BladderCancerUS, @FDAOncology, #pCRMIBC2019
Did your doctors talk to you about the potential impact on your sexuality with the treatments that were given to you are offered to you?
Lee: My husband had prostate cancer, and that is one of the reasons why I got fast tracked so quickly through the urologist. My husband had a personal relationship with the doctor and used to talk to us about sexuality. Here I was now at a stage where I needed
Sharing Stories to Advance Research – Anne’s Story
Anne: I was in the military between the reserves and active duty, for 40 years. I retired as a Lieutenant Colonel. I began my career at 18 years old and the last 15 years I did several overseas combat tours. I was assigned to tours in Iraq, Afghanistan, and in
Women & Bladder Cancer: Sharing Stories to Advance Research
In March of 2019, BCAN was invited to share the experiences of women diagnosed with bladder cancer at the “Bladder Cancer in Women: Identifying Research Needs to Improve Diagnosis and Treatment” program sponsored by Johns Hopkins Greenberg Bladder Cancer Institute and the American Urological Association Translational Research Collaboration. The transcript
Sharing Stories to Advance Research – Lee’s Story
Lee’s Story: I went to my primary care physician after I’d come back from an extensive Caribbean vacation. I put off whatever was going on with this little bit of blood I was seeing, until I got back from that special trip. While I was on vacation, the urgency and frequency
Sharing Stories to Advance Research – Karen’s Story
Karen’s story: My story started 11 years ago when I was 51. I started to have frequent urinary tract infections about four to five times a year. They were very severe; I had a lot of pain with them and a lot of bleeding isolated to the UTI. Then after
Sharing Stories to Advance Research – Camille’s Story
Camille’s Story: I came to this meeting to start taking care of myself. I realized that now that I’ve pushed all the way through the past three and a half years with bladder cancer, I am now at a point where I can help other people. I was diagnosed in
What things did you feel were a benefit to your survivorship?
Anne: Three weeks after my surgery, I drove myself to Johns Hopkins and went to a survivor meeting. The guest speaker was Jearlene Taylor – she had cancer when she was three years old. She had both bags (urostomy and colostomy) She became a model about 16 or 17 years