Muscle Invasive Bladder Cancer

“It is our hope that the My Bladder Cancer Story campaign will be an avenue for those affected by bladder cancer to share their stories to be a voice for those who, for far too long, have felt alone in this fight against this disease.”

Andrea Maddox-Smith, BCAN CEO
Share Your Story
  • Lionel’s Story: A Great Life with a Neobladder, 25 Years Later

    Lionel Cohen is a 25-year bladder cancer survivor and credits his longevity to his decision to opt for a neobladder more than two decades ago, and also to the skill and expertise of Dr. Gary Steinberg, his surgeon. Lionel was diagnosed with non-muscle invasive bladder cancer in 1997 at… Read More
  • Robert’s Story: My Mind Was Racing to the Darkest Places I Could Have Ever Imagined

    February 10, 2021 is a day I will never forget.  This was the day I was told I had abnormal cells and growths in my bladder, according to the cytology report and cystoscopy.  I was devastated, and my mind was racing to the darkest places I could have… Read More
  • Don’s Story: Don’t Be Alone on Your Bladder Cancer Journey

    My bladder cancer story began following minor surgery for vein ablation. After that, I was placed on a blood thinner.  Shortly thereafter, I noticed blood in my urine.  I was referred to a urologist who performed a cystoscopy and discovered what turned out to be a high-grade non-invasive carcinoma-in-situ. Read More
  • Kesha’s Story: Anyone Can Get Bladder Cancer. I Was 39 Years Old.

    I was diagnosed with bladder cancer in December 2019 at the age of 39. Everything happened pretty fast. Before my diagnosis, I was having what I thought were recurring urinary tract infections for six months. I went to my doctor, and he would prescribe me antibiotics, which did not… Read More
  • David’s Story: Never Give Up and Try to Stay Active

    In 2008, I was diagnosed with bladder cancer. Before my initial diagnosis, I had just started a new job and did not have health insurance when my symptoms appeared. I eventually went to the emergency room, where I received an ultrasound and the ER doctor informed me that they found… Read More
  • Alan’s Story: Celebrating My One Year “Stomaversary”

    In 1980, I was diagnosed with Reiter’s syndrome, an autoimmune disease consisting of a triad of symptoms, iritis, urethritis, and arthritis. Over the years, individual symptoms would occasionally flare up. My eyes would burn, or my joints would hurt, and if all three flared up simultaneously, I would have… Read More
  • Melanie’s Story: I Was Shocked to Learn I Had Bladder Cancer

    Although I worked in healthcare for 30 years as a genetic counselor, Melanie was shocked to learn that she had bladder cancer. She told BCAN: Melanie and her husband In 2018, a year before my diagnosis I was having heaviness of the pelvic floor that prompted me to schedule… Read More
  • “Guess what, Jim? You have some urine in your blood.”

    Vietnam Veteran and BCAN volunteer, Jim Scott shares his bladder cancer story at the 2018 Bladder Cancer Think Tank Read Jim’s interview with the American Homefront Project, “More Vietnam vets now qualify for disability benefits, but it may be years before they see the money.” My name is… Read More
  • Alice’s Story: Be Positive About Your Diagnosis

    It was summer of 2018, one night in late July, about two o’clock in the morning. I woke up with this horrific pain in my back on my right side, but I did not think too much of it. Maybe I slept wrong. So, I turned over hoping it would… Read More