Advanced / Metastatic Bladder Cancer

Advanced / Metastatic Bladder Cancer

“It is our hope that the My Bladder Cancer Story campaign will be an avenue for those affected by bladder cancer to share their stories to be a voice for those who, for far too long, have felt alone in this fight against this disease.”

Andrea Maddox-Smith, BCAN CEO
Share Your Story
  • Kesha’s Story: Anyone Can Get Bladder Cancer. I Was 39 Years Old.

    I was diagnosed with bladder cancer in December 2019 at the age of 39. Everything happened pretty fast. Before my diagnosis, I was having what I thought were recurring urinary tract infections for six months. I went to my doctor, and he would prescribe me antibiotics, which did not… Read More
  • David’s Story: Never Give Up and Try to Stay Active

    In 2008, I was diagnosed with bladder cancer. Before my initial diagnosis, I had just started a new job and did not have health insurance when my symptoms appeared. I eventually went to the emergency room, where I received an ultrasound and the ER doctor informed me that they found… Read More
  • Annmarie’s Story: I don’t have a bag, I have a prosthetic bladder

    A very happy Annmarie with her grandson I am a schoolteacher at a high school in Mashpee, Massachusetts. I started to have symptoms in May 2018. I was at school and I got a sharp pain in my kidney area and I thought, “Oh, kidney stones.” I knew something wasn’t… Read More
  • Brenda and Jerry

    Tell us about your husband’s journey. My husband, Jerry, was asymptomatic. One day, his urine looked like pure blood. And was bright red. At the time, we thought it might be a bad kidney infection. The doctors ran tests, a CT scan. They told him he had a spot on… Read More
  • Sharing Stories to Advance Research – Anne’s Story

    Anne:    I was in the military between the reserves and active duty, for 40 years. I retired as a Lieutenant Colonel. I began my career at 18 years old and the last 15 years I did several overseas combat tours. I was assigned to tours in Iraq, Afghanistan, and in… Read More
  • Ben Manages an Unexpected Diagnosis

    Ben and his wife with their son. It all started in December of 2017. I was at a wedding and I urinated some blood. It was not a lot, but it had me worried. My wife is a nurse practitioner, so anything medical I go to her. I told her,… Read More
  • Waltzing with Anne Through Her Bladder Cancer Journey

    “Anne is an incredible example of a patient who refused to be paralyzed by her diagnosis of cancer. She had an incredibly positive attitude from the beginning. She is a very active and motivated person. That didn’t change just because she was diagnosed with cancer,” noted Dr. Noah Hahn, Deputy… Read More
  • Curtis is Crushing Bladder Cancer

    My symptoms started with me urinating more frequently than usual and feeling tired from time to time; however, the symptoms would come and go.  In February 2015, I had a TURP which showed Papillary urothelial carcinoma, low grade with foci suspicious for subepithelial invasion. A rare fragment of muscle, with… Read More
  • Renata Turns to Writing

    We thought my husband Ahmad’s bladder cancer was well under control after the original diagnosis of low grade Stage Ta, in 2011. He had several TURBTs, a partial cystectomy, and cystoscopies every three months. Dealing with the Stage Ta diagnosis, was… Read More