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“It is our hope that the My Bladder Cancer Story campaign will be an avenue for those affected by bladder cancer to share their stories to be a voice for those who, for far too long, have felt alone in this fight against this disease.”

Andrea Maddox-Smith, BCAN CEO
Share Your Story
  • Walter Had Stage IV, Muscle Invasive Bladder Cancer

    Before his Stage IV bladder cancer diagnosis, Walter was healthy but when we could return home from the gym, there was blood in his urine. He knew that something was wrong, but he did not suspect bladder cancer. Read More
  • Allen’s Story: Anger, Denial, Then Acceptance

    In March of 2014, I was diagnosed with stage two bladder cancer. I went in for my annual check-up with my general practitioner and he saw something in my blood work that he did not like, so he requested I do another blood draw. During the next six weeks, I… Read More
  • Lionel’s Story: A Great Life with a Neobladder, 25 Years Later

    Lionel Cohen is a 25-year bladder cancer survivor and credits his longevity to his decision to opt for a neobladder more than two decades ago, and also to the skill and expertise of Dr. Gary Steinberg, his surgeon. Lionel was diagnosed with non-muscle invasive bladder cancer in 1997 at… Read More
  • Damon’s Story: I Did Not Fit the Profile of Your Typical Bladder Cancer Patient

    I was diagnosed with bladder cancer in October 2020 at the age of 58 but experienced symptoms two years before the diagnosis. On New Year’s Day in 2018, I noticed that I was passing what looked like blood clots. I just thought maybe I had too much champagne, or I… Read More
  • Don’s Story: Don’t Be Alone on Your Bladder Cancer Journey

    My bladder cancer story began following minor surgery for vein ablation. After that, I was placed on a blood thinner.  Shortly thereafter, I noticed blood in my urine.  I was referred to a urologist who performed a cystoscopy and discovered what turned out to be a high-grade non-invasive carcinoma-in-situ. Read More
  • Michael’s Cancer Journey(s)

    Bladder cancer is an insidious disease and has a high rate of recurrence.  Michael Morigi of Staten Island, NY, has had bladder cancer.  And prostate cancer.  Bladder cancer was his first bout with the “Big C.” In 2009, Michael was feeling off.  He described it as a strange, “itchy” feeling… Read More
  • David’s Story: Never Give Up and Try to Stay Active

    In 2008, I was diagnosed with bladder cancer. Before my initial diagnosis, I had just started a new job and did not have health insurance when my symptoms appeared. I eventually went to the emergency room, where I received an ultrasound and the ER doctor informed me that they found… Read More
  • Alan’s Story: Celebrating My One Year “Stomaversary”

    In 1980, I was diagnosed with Reiter’s syndrome, an autoimmune disease consisting of a triad of symptoms, iritis, urethritis, and arthritis. Over the years, individual symptoms would occasionally flare up. My eyes would burn, or my joints would hurt, and if all three flared up simultaneously, I would have… Read More
  • “Guess what, Jim? You have some urine in your blood.”

    Vietnam Veteran and BCAN volunteer, Jim Scott shares his bladder cancer story at the 2018 Bladder Cancer Think Tank Read Jim’s interview with the American Homefront Project, “More Vietnam vets now qualify for disability benefits, but it may be years before they see the money.” My name is… Read More