Stories

Stories

“It is our hope that the My Bladder Cancer Story campaign will be an avenue for those affected by bladder cancer to share their stories to be a voice for those who, for far too long, have felt alone in this fight against this disease.”

Andrea Maddox-Smith, BCAN CEO
Share Your Story
  • Andrew’s Bladder Cancer Story: Ask Questions and Take Advice

    Andrew tells his bladder cancer story of facing the disease without his beloved wife by his side during the height of the COVID-19 pandemic. Read More
  • Walter Had Stage IV, Muscle Invasive Bladder Cancer

    Before his Stage IV bladder cancer diagnosis, Walter was healthy but when we could return home from the gym, there was blood in his urine. He knew that something was wrong, but he did not suspect bladder cancer. Read More
  • Dianne’s Story: I Thought I Was Going to Die

    In December 2019, I had a tiny bit of blood in my urine, which prompted me to see my primary doctor. He believed that it was a bladder or urinary tract infection and gave me antibiotics, which made me feel better. Later that week, I was scheduled for an appointment… Read More
  • Ann’s Story: Bladder Cancer Runs in the Family

    Bladder cancer runs in the family My bladder cancer journey started in 2019 when I was diagnosed with stage one non-muscle invasive bladder cancer. However, this was not the first time I heard about this disease. In 2014, my father was diagnosed with bladder cancer. He spent his career working… Read More
  • Krisztina Walks for Bladder Cancer Patients

    Krisztina Emodi is a nurse practitioner at the University of California San Francisco (UCSF).  She works very closely with Dr. Sima Porten, a urologic cancer surgeon, a researcher at UCSF and a 2022 Walk to End Bladder Cancer ambassador. Krisztina Emodi Krisztina and Dr. Porten have been involved… Read More
  • Allen’s Story: Anger, Denial, Then Acceptance

    In March of 2014, I was diagnosed with stage two bladder cancer. I went in for my annual check-up with my general practitioner and he saw something in my blood work that he did not like, so he requested I do another blood draw. During the next six weeks, I… Read More
  • Lionel’s Story: A Great Life with a Neobladder, 25 Years Later

    Lionel Cohen is a 25-year bladder cancer survivor and credits his longevity to his decision to opt for a neobladder more than two decades ago, and also to the skill and expertise of Dr. Gary Steinberg, his surgeon. Lionel was diagnosed with non-muscle invasive bladder cancer in 1997 at… Read More
  • Damon’s Story: I Did Not Fit the Profile of Your Typical Bladder Cancer Patient

    I was diagnosed with bladder cancer in October 2020 at the age of 58 but experienced symptoms two years before the diagnosis. On New Year’s Day in 2018, I noticed that I was passing what looked like blood clots. I just thought maybe I had too much champagne, or I… Read More
  • Kristi’s Story: Being an Advocate for Yourself is the Most Important Thing

    Before my diagnosis, I associated my symptoms with going through menopause; I was 55 when diagnosed. I had bleeding (hematuria) once before and decided to see my nurse practitioner. While there, they did a urinalysis and said everything was fine. The doctor confirmed my thinking that this was related… Read More