Stories

“It is our hope that the My Bladder Cancer Story campaign will be an avenue for those affected by bladder cancer to share their stories to be a voice for those who, for far too long, have felt alone in this fight against this disease.”

Andrea Maddox-Smith, BCAN CEO
Share Your Story
  • Lionel’s Story: A Great Life with a Neobladder, 25 Years Later

    Lionel Cohen is a 25-year bladder cancer survivor and credits his longevity to his decision to opt for a neobladder more than two decades ago, and also to the skill and expertise of Dr. Gary Steinberg, his surgeon. Lionel was diagnosed with non-muscle invasive bladder cancer in 1997 at… Read More
  • Damon’s Story: I Did Not Fit the Profile of Your Typical Bladder Cancer Patient

    I was diagnosed with bladder cancer in October 2020 at the age of 58 but experienced symptoms two years before the diagnosis. On New Year’s Day in 2018, I noticed that I was passing what looked like blood clots. I just thought maybe I had too much champagne, or I… Read More
  • Kristi’s Story: Being an Advocate for Yourself is the Most Important Thing

    Before my diagnosis, I associated my symptoms with going through menopause; I was 55 when diagnosed. I had bleeding (hematuria) once before and decided to see my nurse practitioner. While there, they did a urinalysis and said everything was fine. The doctor confirmed my thinking that this was related… Read More
  • Robert’s Story: My Mind Was Racing to the Darkest Places I Could Have Ever Imagined

    February 10, 2021 is a day I will never forget.  This was the day I was told I had abnormal cells and growths in my bladder, according to the cytology report and cystoscopy.  I was devastated, and my mind was racing to the darkest places I could have… Read More
  • Don’s Story: Don’t Be Alone on Your Bladder Cancer Journey

    My bladder cancer story began following minor surgery for vein ablation. After that, I was placed on a blood thinner.  Shortly thereafter, I noticed blood in my urine.  I was referred to a urologist who performed a cystoscopy and discovered what turned out to be a high-grade non-invasive carcinoma-in-situ. Read More
  • Diana’s Story: Be Positive, Informed and Realistic

    My journey with cancer started 14 years ago when I was diagnosed with endometrial cancer. I had a hysterectomy, and no further treatment was necessary. But after I healed, I experienced intermittent spotting a few times a year. I had it checked out thoroughly, and my oncologist assured me… Read More
  • Shelby Got Bladder Cancer at 21 Years of Age

    I was diagnosed with bladder cancer in 2021 at the age of 21. One day I decided to make an appointment to see my OB/GYN because I was having what I thought were painful periods. The doctor did the usual pap smear, which was painful. I have a family history… Read More
  • Michael’s Cancer Journey(s)

    Bladder cancer is an insidious disease and has a high rate of recurrence.  Michael Morigi of Staten Island, NY, has had bladder cancer.  And prostate cancer.  Bladder cancer was his first bout with the “Big C.” In 2009, Michael was feeling off.  He described it as a strange, “itchy” feeling… Read More
  • Kesha’s Story: Anyone Can Get Bladder Cancer. I Was 39 Years Old.

    I was diagnosed with bladder cancer in December 2019 at the age of 39. Everything happened pretty fast. Before my diagnosis, I was having what I thought were recurring urinary tract infections for six months. I went to my doctor, and he would prescribe me antibiotics, which did not… Read More